Evaluating Families' Satisfaction With Early Hearing Detection and Intervention Services in Massachusetts Purpose: To determine levels of families' satisfaction and anxiety associated with the early hearing detection and intervention (EHDI) process in Massachusetts, and to assess the relationship between a child’s hearing status and levels of family satisfaction.Method: Surveys were mailed to families whose infants (a) passed their initial hearing ... Article
Article  |   June 2007
Evaluating Families' Satisfaction With Early Hearing Detection and Intervention Services in Massachusetts
 
Author Notes
  • Contact author: Janet Farrell, Massachusetts Department of Public Health, 250 Washington Street, 5th Floor, Boston, MA 02108. E-mail: janet.farrell@state.ma.us.
  • © 2007 American Speech-Language-Hearing AssociationAmerican Speech-Language-Hearing Association
Article Information
Hearing Disorders / Special Populations / Early Identification & Intervention
Article   |   June 2007
Evaluating Families' Satisfaction With Early Hearing Detection and Intervention Services in Massachusetts
American Journal of Audiology, June 2007, Vol. 16, 29-56. doi:10.1044/1059-0889(2007/004)
History: Received November 8, 2006 , Accepted March 20, 2007
 
American Journal of Audiology, June 2007, Vol. 16, 29-56. doi:10.1044/1059-0889(2007/004)
History: Received November 8, 2006; Accepted March 20, 2007

Purpose: To determine levels of families' satisfaction and anxiety associated with the early hearing detection and intervention (EHDI) process in Massachusetts, and to assess the relationship between a child’s hearing status and levels of family satisfaction.

Method: Surveys were mailed to families whose infants (a) passed their initial hearing screening (Group 1), (b) did not pass their initial screening but subsequently passed an outpatient rescreen or diagnostic evaluation (Group 2), or (c) were identified with permanent hearing loss (Group 3). Survey instruments measured families' satisfaction and anxiety associated with each stage of the EHDI process.

Results: Of the 4,138 families surveyed, 1,106 (27%) responded. Families reported satisfaction with screening services (Group 1 = 88%; Group 2 = 86%; Group 3 = 75%), and few reported anxiety prior to the hearing screening (Group 1= 4%; Group 2 = 15%; Group 3 = 19%). Among families requiring retesting services, 97% of Group 2 and 87% of Group 3 families were satisfied. Among Group 3 families, 94% reported satisfaction with the care their audiologist was providing, and 79% were satisfied with their early intervention services overall.

Conclusions: Families reported satisfaction with the EHDI services they received in Massachusetts and expressed strong support for the universal newborn hearing screening initiative.

Acknowledgments
The authors are grateful to the parents who kindly participated in this survey. The authors would also like to thank Roger Wong and Martha deHahn of the Massachusetts UNHSP, members of the Colorado Infant Hearing Program and CDC EHDI Program who participated in this project, and Teresa Anderson, Tracy Osbahr, and Nancy Wilber for their careful review of the manuscript. This study was funded by CDC Cooperative Agreements with Massachusetts (UR3/CCU118857-03) and Colorado (UR3/CCU818868-04) under PA 00076-“Early Hearing Detection and Intervention (EHDI) Tracking, Research, and Integration with Other Newborn Screening Programs.” Its contents are solely the responsibility of the authors and do not necessarily represent the official view of the CDC.
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