State and Territory EHDI Databases: What We Do and Don't Know About the Hearing or Audiological Data From Identified Children Purpose The purpose of this study was to define the information currently collected by state and territory Early Hearing Detection and Intervention (EHDI) coordinators and to determine whether best practice guidelines are used. Method A multiple-choice electronic survey querying areas of diagnostic assessment, amplification, early intervention (EI) and ... Research Article
Research Article  |   March 01, 2014
State and Territory EHDI Databases: What We Do and Don't Know About the Hearing or Audiological Data From Identified Children
 
Author Affiliations & Notes
  • Kristin Uhler
    Marion Downs Hearing Center at the University of Colorado Hospital, University of Colorado at Boulder
  • Vickie Thomson
    Marion Downs Hearing Center at the University of Colorado Hospital, University of Colorado at Boulder
  • Nicole Cyr
    Marion Downs Hearing Center at the University of Colorado Hospital, University of Colorado at Boulder
  • Sandra Abbott Gabbard
    Marion Downs Hearing Center at the University of Colorado Hospital, University of Colorado at Boulder
  • Christine Yoshinaga-Itano
    Marion Downs Hearing Center at the University of Colorado Hospital, University of Colorado at Boulder
  • Disclosure: The authors have declared that no competing interests existed at the time of publication.
    Disclosure: The authors have declared that no competing interests existed at the time of publication.×
  • Correspondence to Kristin Uhler, who is now at the University of Colorado at Denver: kristin.uhler@ucdenver.edu
  • Editor: Larry Humes
    Editor: Larry Humes×
Article Information
Hearing Disorders / Special Populations / Early Identification & Intervention / Research Articles
Research Article   |   March 01, 2014
State and Territory EHDI Databases: What We Do and Don't Know About the Hearing or Audiological Data From Identified Children
American Journal of Audiology, March 2014, Vol. 23, 34-43. doi:10.1044/1059-0889(2013/13-0015)
History: Received March 18, 2013 , Revised May 20, 2013 , Accepted May 24, 2013
 
American Journal of Audiology, March 2014, Vol. 23, 34-43. doi:10.1044/1059-0889(2013/13-0015)
History: Received March 18, 2013; Revised May 20, 2013; Accepted May 24, 2013

Purpose The purpose of this study was to define the information currently collected by state and territory Early Hearing Detection and Intervention (EHDI) coordinators and to determine whether best practice guidelines are used.

Method A multiple-choice electronic survey querying areas of diagnostic assessment, amplification, early intervention (EI) and medical information regarding hearing loss was sent to all state and territory EHDI coordinators.

Results Seventy percent of surveys were completed. Diagnostic, amplification, and Part C services were tracked by the majority of respondents. Additionally, medical prenatal and postnatal risks were collected.

Conclusion Data collected on audiologic screening and diagnostic evaluations has increased. On the basis of these results, it is difficult to discern whether best practices are being used for each child. A delay in reporting a confirmed hearing loss was observed. Amplification results suggest that systems are not in place to ensure consistency and accountability for fitting amplification in infants. The results of this survey identified audiologic and EI information tracked by states to help provide a framework to monitor quality care in the future.

Acknowledgments
Funding was provided by the Association of University Centers on Disabilities in collaboration with the Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities Developmental Outcome Feasibility Study: Deaf/Hard of Hearing, Grants UCD RTOI 2008-999-01 and UCT RTOI 2001-999-01, awarded to Christine Yoshinaga-Itano (PI). We give special thanks to all of the state and territory Early Hearing Detection and Intervention coordinators who participated in this study.
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