Parent-to-Parent Support for Parents With Children Who Are Deaf or Hard of Hearing: A Conceptual Framework Background Parent-to-parent support for parents with children who are deaf or hard of hearing (D/HH) is identified as an important component of Early Hearing Detection and Intervention (EHDI) programs for children with hearing loss. Purpose The specific aim of this review was to identify the constructs and components ... Review Article
Review Article  |   December 01, 2014
Parent-to-Parent Support for Parents With Children Who Are Deaf or Hard of Hearing: A Conceptual Framework
 
Author Affiliations & Notes
  • Rebecca J. Henderson
    Health & Rehabilitation Sciences Program, Western University, London, ON, Canada
  • Andrew Johnson
    Health & Rehabilitation Sciences Program, Western University, London, ON, Canada
  • Sheila Moodie
    Health & Rehabilitation Sciences Program, Western University, London, ON, Canada
    National Centre for Audiology, Western University, London, ON, Canada
  • Disclosure: The authors have declared that no competing interests existed at the time of publication.
    Disclosure: The authors have declared that no competing interests existed at the time of publication.×
  • Correspondence to Sheila Moodie: sheila@nca.uwo.ca
  • Editor and Associate Editor: Larry Humes
    Editor and Associate Editor: Larry Humes×
Article Information
Hearing Disorders / Special Populations / Early Identification & Intervention / Review Articles
Review Article   |   December 01, 2014
Parent-to-Parent Support for Parents With Children Who Are Deaf or Hard of Hearing: A Conceptual Framework
American Journal of Audiology, December 2014, Vol. 23, 437-448. doi:10.1044/2014_AJA-14-0029
History: Received June 13, 2014 , Revised August 21, 2014 , Accepted August 31, 2014
 
American Journal of Audiology, December 2014, Vol. 23, 437-448. doi:10.1044/2014_AJA-14-0029
History: Received June 13, 2014; Revised August 21, 2014; Accepted August 31, 2014
Web of Science® Times Cited: 3

Background Parent-to-parent support for parents with children who are deaf or hard of hearing (D/HH) is identified as an important component of Early Hearing Detection and Intervention (EHDI) programs for children with hearing loss.

Purpose The specific aim of this review was to identify the constructs and components of parent-to-parent support for parents of children who are D/HH.

Research Design An extensive scoping literature review identified 39 peer-reviewed articles published from 2000 to 2014. Studies were selected and reviewed based on standardized procedures.

Results Data were identified, extracted, and organized into libraries of thematic and descriptive content. A conceptual framework of parent-to-parent support for parents of children who are D/HH was developed and presented in a comprehensive, bidirectional informational graphic. The constructs and components of the conceptual framework are (a) well-being: parent, family, and child; (b) knowledge: advocacy, system navigation, and education; and (c) empowerment: confidence and competence.

Conclusion The findings from this scoping review led to the development of a structured conceptual framework of parent-to-parent support for parents of children who are D/HH. The conceptual framework provides an important opportunity to explore and clearly define the vital contribution of parents in EHDI programs.

Acknowledgments
Funding for this work was provided by the Ontario Ministry of Children and Youth Services. We acknowledge and appreciate the comments and suggestions provided by Anita Cramp and Susan Scollie on earlier versions of this article.
Order a Subscription
Pay Per View
Entire American Journal of Audiology content & archive
24-hour access
This Article
24-hour access